Henrietta Lacks – Resources

About the book and author

Rebecca Skloot’s Website: http://rebeccaskloot.com/

Ms. Skloot’s website is rich with additional information regarding The Immortal Life of Henrietta Lacks. Readers may want to look over Special Features segment to see the additional photos of the family and places mentioned in the book as well as other audio and video resources.

New York Times Book Review: Eternal Life By Lisa Margonelli

What We’re Reading

Prostate Cancer Isn’t Color Blind
“Amid our renewed national conversation about racial discrimination and equality, injustice in health care must be addressed directly. We can start by rethinking how we talk about and test for prostate cancer.”

Rebecca Skloot on the Common Rule: Your Cells. Their Research. Your Permission?

Bill of Health blog provides a one-stop shop for readers interested in news, commentary, and scholarship in the fields of health law policy, biotechnology, and bioethics. We’d especially like to draw your attention to the 7-part series on the NPRM Symposium here. See the bottom of the post for links to the earlier posts in the series.

The U.S. Department of Health and Human Services, Office for Human Research Protections publishes extensive information about the regulations regarding human research.

NIH finally makes good with Henrietta Lacks’ family — and it’s about time, ethicist says. From NBC News.

Want to Dig Deep? Books for Further Reading

Dark Medicine: Rationalizing Unethical Medical Research
This collection of essays looks at the dark medical research conducted during and after World War II, how it was brought to light, and the rationalizations of those who perpetrated and benefited from it.

Law and Ethics in Biomedical Research: Regulation, Conflict of Interest, and Liability

Medical Apartheid
The first comprehensive history of medical experimentation on African Americans.

Writing About Patients: Responsibilities, Risks, and Ramifications
141 analysts describe their thoughts about disguising a patient versus asking a patient’s consent to appear in a paper, and also their perceptions of the clinical ramifications of a patient reading the material, whether by accident or design.


Video Resources

Video description: Henrietta Lacks died 62 years ago, but her cells — known as HeLa — live on through scientific research, having led to world-changing medical advances for decades. Margaret Warner talks to Dr. Francis Collins of the National Institutes of Health about a new agreement made with the Lacks’ family over control of her DNA legacy.

Video description: Rebecca Skloot, author of “The Immortal Life of Henrietta Lacks” discusses the story of HeLa, the first human cells replicated in a lab.

Video description: The Way of All Flesh, a one-hour BBC documentary on Henrietta Lacks and HeLa directed by Adam Curtis, won the Best Science and Nature Documentary at the San Francisco International Film Festival.